Rare Disease Resources
Global Genes is a non-profit organization committed to providing information, resources and connections to all communities affected by rare disease.
NCATS is all about getting more treatments to more patients more quickly. The Center's organizational structure includes diverse representation, including those from disease advocacy organizations and private equity firms, along with renowned scholars in translational science and regulatory review.
NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
